Whether you are newly diagnosed with IC or a grizzled veteran, you do NOT have to take this journey alone. It’s important that you connect with others. Why? People who are socially connected have less anxiety, less depression and higher self-esteem. You have thousands of IC brothers and sisters who share your struggles and are willing to offer a shoulder and/or words of encouragement to you. You can find support in local IC/pelvic pain support groups, through social networking and live meetings that you can participate from the comfort of your home.
Live / Streamed Support Group Meetings
The ICN offers live IC/BPS/PFD support group meetings held twice a month on the 1st and 3rd Sunday of every month, 12:30PM PST, 3:30PM EST. Led by national IC support group leader in the USA Jill Osborne, she will take your questions about IC, share new information, review IC subtypes, explore treatment options, self-help tips and more. Each meeting lasts between 2 to 4 hours. Their purpose is to educate and inform patients so that they can work more effectively with their medical care providers. Jill also does meetings during the middle of the week on random days and times to accommodate patient schedules, as well as our international viewers.
- ICN Face Page – https://www.facebook.com/interstitialcystitisnetwork?fref=ts
- ICN YouTube Channel – https://www.youtube.com/icnjill/
- Streaming coming soon!