IC Awareness Month

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IC Awareness Daily Fact #1: IC Affects Millions of People

Interstitial cystitis is a pelvic pain condition that affects millions around the world. In the USA, epidemiological studies suggest that three to eight million women in the USA and one to four million men with IC may have symptoms of interstitial cystitis, as many as one out of every 26 people. Interstitial cystitis has been [...]

By |2022-09-01T21:19:01-07:00September 1st, 2022|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #1: IC Affects Millions of People

Daily Fact #21 – Anxiety and IC

Got Anxiety AND IC? You are not alone! Do you struggle with anxiety disorder? Catastrophic thinking? Chronic overlapping pain conditions (IC, IBS, vulvodynia, fibromyalgia, TMJ, migraines, etc.)? New research from the Chronic Pain Research Alliance has identified that these patients struggle with a central nervous system maladaption (aka injury) that has left the brain in [...]

By |2022-09-27T16:13:41-07:00September 21st, 2014|Announcements, Daily Facts|Comments Off on Daily Fact #21 – Anxiety and IC

Daily Fact #15 – Disability and IC

Patients with more severe IC who are unable to work may apply for disability benefits in your state our country. In the USA, there are four different types of disability insurance. Private Disability Insurance Private Disability Insurance is usually obtained through your employer if they offer disability benefits. In general, private disability insurance kicks in [...]

By |2017-07-21T07:46:46-07:00September 15th, 2014|Announcements, Daily Facts|Comments Off on Daily Fact #15 – Disability and IC

IC Awareness Daily Fact #12 – Hunner’s Lesions Require Treatment

Approximately 15% of IC patients have profound, extremely painful areas of inflammation in the bladder wall known as Hunner’s Lesions (formerly Hunner's Ulcers). These larger, bleeding wounds in the bladder represent the most severe form of interstitial cystitis and bladder pain syndrome. Research released in 2014 (Van Der AA, et al. ) found that Hunner's lesions [...]

By |2020-09-12T14:25:40-07:00September 12th, 2014|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #12 – Hunner’s Lesions Require Treatment

IC Awareness Daily Fact #10 – Children With IC/BPS Face Many Struggles

(By Jill Heidi Osborne, ICN President) It's hard enough to face pelvic pain as an adult, but can you imagine being a young child who can't sleep through the night, can't sit through class and who may not be believed by their families or doctors? Children as young as three years old have been diagnosed with [...]

By |2017-07-21T07:46:46-07:00September 10th, 2014|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #10 – Children With IC/BPS Face Many Struggles

IC Awareness Daily Fact #8 – Inappropriate Hysterectomies Tragically Occur

Some patients have had inappropriate hysterectomies only to discover, after the fact, that their pelvic pain was originating from their bladder. IC patient Angela Burch won a $2,000,000 federal medical malpractice settlement in Florida when her ob-gyn needlessly removed her healthy uterus even after the urologist reported that she had interstitial cystitis. This is not [...]

By |2017-07-21T07:46:46-07:00September 8th, 2014|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #8 – Inappropriate Hysterectomies Tragically Occur

IC Awareness Daily Fact #7 – The Impact of IC on Families

IC affects not only the patient but also the extended family. Parents with IC worry about their ability to support their family. Children wonder why their parent cannot attend normal daily functions, like baseball games, and often mistakenly assume that a parent is dying. The ICN has written a children's book "My Mom Has IC: [...]

By |2017-07-21T07:46:46-07:00September 7th, 2014|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #7 – The Impact of IC on Families

IC Daily Fact #6 – IC and Diet Modification

One of the easiest ways for patients to try to reduce their bladder and prostate discomfort is by removing foods which are high in acid, alcohol or hot spices. Even one cup of coffee day, one green tea or one soda can trigger severe bladder irritation and discomfort. Worse, that daily acid wash may prevent [...]

By |2022-09-06T16:28:07-07:00September 6th, 2014|Announcements, Daily Facts|Comments Off on IC Daily Fact #6 – IC and Diet Modification

IC Awareness Daily Fact #5 – Ketamine Cystitis

In the past ten years, ketamine cystitis has emerged as a new, critical health need. Researchers around the world have documented growing numbers of young adults who present with severe urinary tract symptoms and bleeding, resulting from their use of ketamine. A recreational drug known for its dissociative anesthesia effects, ketamine has replaced heroin as [...]

By |2022-09-01T23:06:08-07:00September 5th, 2014|Announcements, Daily Facts|Comments Off on IC Awareness Daily Fact #5 – Ketamine Cystitis

IC Awareness Month Begins – Ten Ways You Can Be Involved

The most exciting time of the year for the IC community, IC Awareness Month, begins September first as patients around the world unite to educate others about IC. We need to reach those patients who are suffering in silence and give them hope. We need to educate doctors who are still treating IC out of [...]

By |2017-07-21T07:46:46-07:00August 31st, 2014|Announcements, Awareness Items, Patient Activism, Patient Projects|Comments Off on IC Awareness Month Begins – Ten Ways You Can Be Involved