Patient Projects

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IC Patient Video – The good… and The BAD! Kali’s Story

AWESOME IC Awareness Video by a very courageous young girl who was determined to prove that she could prevail despite IC. We love that she was strong and determined to finish high school, enjoy prom and fight for every moment of her life and her dignity. She's a true inspiration!!!

By | 2017-07-21T07:46:50-07:00 September 20th, 2012|Announcements, IC Videos, Patient Projects|Comments Off on IC Patient Video – The good… and The BAD! Kali’s Story

Amazing Video – What IC is really like at 4am

Hands down IC awareness video awesomeness. We want to thank Christine for sharing her very personal story in an IC Awareness Video that she filmed at 4am in the midst of a painful flare. Just look at her face... she is one of millions of men and women struggling with this... and she, like so [...]

By | 2017-07-21T07:46:50-07:00 September 20th, 2012|Announcements, IC Videos, Patient Projects|Comments Off on Amazing Video – What IC is really like at 4am

Amanda DeMasters writes great article for the Sierra News

We love it when patients speak out and Amanda is a shining example of a patient determined to make a difference! Her article "I Have IC, But IC Doesn't Have Me" shares her story, her struggle to do the things that she loves in her life and a potentially difficult decision about having her bladder [...]

By | 2012-09-12T18:02:02-07:00 September 12th, 2012|Announcements, Media Kit, Patient Projects|Comments Off on Amanda DeMasters writes great article for the Sierra News

IC patient in Dover UK sets up new chronic pain support group

We love IC patients who step outside of their own struggles to reach out and help others. Here's a young mother in England, Karen Pierce, who recognized a need for other patients struggling with chronic pain and, with the help of her local medical center, has started a support group. Their first meeting is this [...]

By | 2012-09-11T16:15:55-07:00 September 11th, 2012|Announcements, Patient Projects|Comments Off on IC patient in Dover UK sets up new chronic pain support group

The Tennessean – Stand Together, Spread Word About IC

Our congratulations to IC'er Tabatha Bradley of Nashville TN who has written a lovely article about IC Awareness Month that appeared September 8th in her local paper!!! Love the title "Stand Together, Spread Word about IC." That's truly what its all about! Read it now at: http://www.tennessean.com/article/20120908/OPINION03/309080009/Stand-together-spread-word-about-interstitial-cystitis/a>

By | 2017-07-21T07:46:50-07:00 September 11th, 2012|Announcements, Media Kit, Patient Projects|Comments Off on The Tennessean – Stand Together, Spread Word About IC

Poster Entrant – London Edwards

"I am an artist and I was going to hand draw one, but I haven't felt well enough to sit up and do so. This is a photo of me. I am no longer able to work. I am in constant poin. I won't give up. I just won't. I can't" These are the words [...]

By | 2012-10-10T20:18:15-07:00 September 10th, 2012|Announcements, Patient Projects, Poster Contest|Comments Off on Poster Entrant – London Edwards

Poster Contest Entry – Sarah Juarez

Our gratitude to Sarah Juarez who reinforces our need for compassion, care and hope in this very cool entry to the contest. She writes "Frequency, pain, urgency, IC is real. Can't get a diagnosis? Get informed, learn the facts, there is compassion, care and hope for you and someday a cure." We can't disagree with [...]

By | 2012-09-10T20:41:36-07:00 September 10th, 2012|Announcements, Patient Projects, Poster Contest|Comments Off on Poster Contest Entry – Sarah Juarez

Poster Entry – Tammy Perkins

When Tammy puts a poster together, she puts her heart and soul into it and this poster says it all. IC is real, IC is treatable, there is hope and, most of all, you are not alone! This has all the symbols that work for our movement. IC is world wide. IC patients help others [...]

By | 2017-07-21T07:46:50-07:00 September 6th, 2012|Announcements, Patient Projects, Poster Contest|Comments Off on Poster Entry – Tammy Perkins