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Family holds IC Awareness Walk to honor their mother!

IC patient Cheryl Howell would be so proud of her children. Cheryl struggled with IC for several years before passing away unexpectedly in 2011. Her children and family wanted to honor her life and they did so in a magical and special way. They held an IC Awareness Walk on September 21st of this year [...]

By |2017-07-21T07:46:47-07:00September 30th, 2013|Announcements, Awareness Items, Donations, Patient Projects|Comments Off on Family holds IC Awareness Walk to honor their mother!

New Poster Entry – Jaime Aragon

New Poster Entry by Jamie using all the key terms we associate with IC... it just tells it like it is from the bladder to pain to isolation to hope, etc. etc. - Love love love this!!!!

By |2017-07-21T07:46:47-07:00September 20th, 2013|Announcements, Patient Projects, Poster Contest|Comments Off on New Poster Entry – Jaime Aragon

New Poster Entry – Mary McComas

Mary has created a fabulous virtual collage to share her message about IC. From tattoos to heating pads, sleepless nights to sharing a message of hope, she reminds us all that "Together, We Fight Stronger."

By |2017-07-21T07:46:47-07:00September 20th, 2013|Announcements, Patient Projects, Poster Contest|Comments Off on New Poster Entry – Mary McComas

2013 Facebook Timeline Image Contest

We would love to offer a selection of Timeline images that patients can pick from for the month of September! Like the poster contest above, please create an image that shares your story and/or life with IC. All languages welcome and needed so that we can expand our international outreach effort. Requirements: A - It must [...]

By |2017-07-21T07:46:50-07:00July 12th, 2013|Announcements, Facebook Activism, Facebook Timeline Contest, Patient Projects|Comments Off on 2013 Facebook Timeline Image Contest

2013 Poster Contest (All Languages, Nations Welcome & Needed)

You know that saying "A picture speaks a thousand words?" We urgently need patients to tell their stories and/or share their life with IC by creating a poster that we can share! We want to see how you express your struggles and/or life with IC! We also urgently need posters using different languages including: Spanish, French, [...]

By |2017-07-21T07:46:50-07:00July 12th, 2013|Announcements, Patient Projects, Poster Contest|Comments Off on 2013 Poster Contest (All Languages, Nations Welcome & Needed)

And now it’s up to you! – An IC blog by Tali Kateri

There are many voices in the IC movement, some old and some young. Some IC veterans and others newly diagnosed and ready to share their experience of life with IC. Some patients have an "in your face" attitude due, in great part, to the total and complete frustration that they've lived with as they've sought [...]

By |2017-07-21T07:46:50-07:00October 1st, 2012|Announcements, Patient Projects|Comments Off on And now it’s up to you! – An IC blog by Tali Kateri

IC Poster Contest Entry – Glenna Downey

Glenna Downey's entry for our IC Awareness Month campaign is all about friendship. She wrote ".I have been making posters throughout the month to all my dearest friends I have met through my journey of Ic... to show how much I appreciate there support in this journey, we are like family, and its just a [...]

By |2012-09-20T21:29:52-07:00September 20th, 2012|Announcements, Patient Projects, Poster Contest|Comments Off on IC Poster Contest Entry – Glenna Downey

Patient Video – Getting Real about IC, vulvodynia and pelvic pain

Valerie G has given us the most honest discussion of how IC has impacted her life at 28 years old. She talks about pain so intense that she couldn't sit or stand. She talks about how it began, how its changed her life, what she struggles with and so much more! For anyone who thinks [...]

By |2017-07-21T07:46:50-07:00September 20th, 2012|Announcements, IC Videos, Patient Projects|Comments Off on Patient Video – Getting Real about IC, vulvodynia and pelvic pain