2015 IC Awareness Month Proclamation

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One way that patients can get involved is by asking your local representatives to honor IC Awareness Month with a proclamation. We’ve made this easy for you by including a sample letter and proclamation. Simply print out the attached pdf file and mail to your city, county, state and/or federal officials! Download the PDF file of the official 2015 Proclamation Letter & Request here! 

2015 Proclamation Request

Dear __________

My life and/or the life of a family member or friend has been severely disrupted by interstitial cystitis, a devastating pelvic pain condition. Characterized by urinary frequency, urgency, pressure and/or severe pain as the bladder fills, many patients struggle to find knowledgeable care providers, affordable treatments and pain care. Students with IC have been punished for asking to use the restroom at school. Employees with IC, prostatitis, prostate cancer, incontinence, Crohn’s Disease and IBS are often forced to hold it and endure severe pain out of fear that they will lose their jobs. I hope that you will consider issuing a proclamation on behalf of IC Awareness Month to help educate our community and employers about the needs of the millions of men and women struggling with this often agonizing bladder condition.

Sample IC Awareness Month Proclamation

Whereas, 3 to 8 million women in the USA and 1 to 4 million men of all ages suffer the devastating effects of this chronic pelvic pain disorder; and

Whereas, many physicians are unaware of the symptoms and effects of interstitial cystitis/bladder pain syndrome, causing patients to suffer for years before they obtain a correct diagnosis and medical treatment; and

Whereas, medical research efforts into interstitial cystitis/bladder pain syndrome have yet to discover the cause nor cure for this disabling medical condition and federal research money has been severely reduced; and

Whereas, there is a critical need to educate and support individuals and families affected by interstitial cystitis;

Now, Therefore, Be It Resolved that September 2015 is hereby designed as Interstitial Cystitis Awareness Month during which patients, support groups and organizations call for increases in public and private sector funding for medical research, targeted educational programs for health professionals, patients and the public and recognition of urological disorders as a significant public health issue.

Proclaimed This Day, September 2015
I thank you for your consideration.

Sincerely,

 

(Your Name)

IC Awareness Month is a project of Interstitial Cystitis Network, a social advocacy and health education company founded by IC patients for IC patients. Learn more about IC by visiting: https://www.ic-network.com
IC Network, PO Box 2159, Healdsburg, CA 95448 – 800.928.7496 (v) 707.538.9444 (f) icnetwork@mac.com (e)

By | 2015-08-26T16:37:27-07:00 August 26th, 2015|Patient Activism, Proclamations|Comments Off on 2015 IC Awareness Month Proclamation

About the Author:

My Google Profile+ Jill Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. Representing the IC community, she has appeared radio and TV shows including the PBS “Healthy Body Healthy Mind” television series. She serves as editor of the IC Optimist quarterly magazine and has authored dozens of articles on IC. She spends the majority of her time developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app!