Approximately 15% of IC patients have profound, extremely painful areas of inflammation in the bladder wall known as Hunner’s Lesions (formerly Hunner's Ulcers). These larger, bleeding wounds in the bladder represent the most severe form of interstitial cystitis and bladder pain syndrome. Research released in 2014 (Van Der AA, et al. ) found that Hunner's lesions [...]
TikTok @icnetworkjill IC Awareness Fact 1 - Millions of men, women and children suffer of all ages! This is not a womans disease. #ictok #abuseawareness ♬ original sound - IC Network Millions Struggle With IC/BPS Symptoms Interstitial cystitis is a pelvic pain condition that affects millions around the world. In the USA, epidemiological studies [...]
Got Anxiety AND IC? You are not alone! Do you struggle with anxiety disorder? Catastrophic thinking? Chronic overlapping pain conditions (IC, IBS, vulvodynia, fibromyalgia, TMJ, migraines, etc.)? New research from the Chronic Pain Research Alliance has identified that these patients struggle with a central nervous system maladaption (aka injury) that has left the brain in [...]
Interstitial Cystitis (IC/BPS) affects men of all ages, from high school students to seniors, air force pilots to Hollywood actors. Many, if not most, have been misdiagnosed with chronic prostatitis, often for years, before they receive a correct diagnosis. You might also be surprised to learn that IC/BPS has been tracked in high numbers [...]
Patients with more severe IC who are unable to work may apply for disability benefits. In the USA, there are four different types of disability insurance. Private Disability Insurance Private Disability Insurance is usually obtained through your employer if they offer disability benefits. In general, private disability insurance kicks in one you meet the criteria [...]
(By Jill Heidi Osborne, ICN President) It's hard enough to face pelvic pain as an adult, but can you imagine being a young child who can't sleep through the night, can't sit through class and who may not be believed by their families or doctors? Children as young as three years old have been diagnosed with [...]
IC affects not only the patient but also the extended family. Parents with IC worry about their ability to support their family. Children wonder why their parent cannot attend normal daily functions, like baseball games, and often mistakenly assume that a parent is dying. The ICN has written a children's book "My Mom Has IC: [...]
Tik Tok Video on the IC Diet @icnetworkjill iC Awareness Month Daily Fact 6 Some IC patients experience severe symptoms after drinking coffee, tea, soda, cranberry, chocolate or multivitamins. The ICN provides extensive information on the IC diet as well as coaching if you are struggling! #ictok #icawareness ♬ original sound - IC Network IC/BPS [...]
Social networking is vital to our success. You can educate more people with a simple post on your Facebook and blog pages than many of us can with a national press release. We ask you to please spread the word. Add A Daily Fact Every Day Every day during the month of September ad a [...]