How YOU can be involved in IC Awareness Month

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Each September patients unite around the world to raise awareness for interstitial cystitis and chronic pelvic pain. This is an exciting time because we now believe that there are distinct subgroups to IC which would explain why many treatments haven’t worked for patients. We’ve got to get the word out so that physicians are aware of the latest information. Here’s how you can help!

#1 – Spread our IC Daily Fact through social networking

Write a few sentences or even a story about the campaign for your blog, Facebook, Twitter, Pinterest or in “what’s on your mind statement.” Every day in September, share our IC Daily Fact from our website!

#2 – Share your story

We’d like to hear about your success stories and/or struggles. Is your doctor knowledgeable about IC? How long did it take to be diagnosed? Are you responding to treatments? How has IC changed your life? Are you hopeful or frustrated?? Tell your story right now in the ICN Support Forum (must use Facebook to log in or register to post in the forum), on our IC Awareness Month Facebook page. Or, you can email it to us at: patient stories@icawareness.org

#3 – Participate in our contests

We have three contests this year: Poster Contest, Meme Contest and Doctor of the Year Award!

#4 – Get politically active

Encourage your local, regional and national politicians to pass a proclamation to honor IC Awareness Month. To make this easy for you, use the letter we’ve placed on the campaign website.

#5 – Send out our press release

Send our press release to your local and regional paper, asking if they would do a story about IC and IC Awareness Month. The press love personal, local stories. Share a few paragraphs about your life with IC in your community, as well as any obstacles you have faced with finding doctors, getting pain care and/or the public perception of bladder diseases.

#6 – Educate your doctors

Bring IC Awareness materials and our educational materials to each of your physicians and nursing staff to place in their offices and waiting rooms. Share the latest IC articles with your physicians. 

#7 – Make a donation

Make a donation directly to an IC research center. We support Beaumont Hospital in Royal Oak Michigan for their cutting edge IC studies.

#8 – Mobilize your support group

If you’re in a support group, ask them to participate in IC Awareness Month. They should have a meeting in September and, if possible, send out our press release. You could do an activity, a bake sale, garage sale to raise money for research. You could organize a walk for awareness or approach a local TV station and ask for a story on IC. The sky is the limit. Dare to be bold! If there is no support group in your area, consider starting a new group to provide support and build friendships among patients who often feel very isolated and alone.

By | 2017-07-21T07:46:45+00:00 August 26th, 2015|Announcements, Patient Activism|Comments Off on How YOU can be involved in IC Awareness Month

About the Author:

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Jill Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. Representing the IC community, she has appeared radio and TV shows including the PBS “Healthy Body Healthy Mind” television series. She serves as editor of the IC Optimist quarterly magazine and has authored dozens of articles on IC. She spends the majority of her time developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app!